Twice

I am eating my words from my last post guys...

We had another scare today.

We were just a couple days away from going home. We had a small check list of things to complete before we got our final discharge. One of those things was taking the RA line out of his stomach. Just like the heart cath last week, this was supposed to be a straight forward easy procedure. It was done right in his room and should have taken five minutes tops.

But then ten minutes went by. And then twenty.

A nurse came into the parents lounge where we were waiting and asked us to step into the hallway because "something happened".

Colston went into cardiac arrest again. He was brought back after a couple minutes of compressions. 

He is back on the ventilator and now has fluid around his heart that they are monitoring very closely to see if they need to drain it.

He also has an IV in his neck now.

The doctors arent sure what caused this. They suspect his pain was making his heart rate go up too high and before they could get him pain meds he became unresponsive.

Its so hard seeing him hooked back up to everything after just having held him and rocked him this morning. Who knows when we will be able to hold him again and who knows how far back this has set us. Hopefully once the tube is pulled Colston will be able to pick up feeding quickly again.

My concern was neurological damage from having gone into cardiac arrest twice in a week (did I mention we REALLY hate mondays now?)  The doctor reassured me there shouldnt be any brain damage because compressions were started immediately in both instances which means he never lost oxygen to the brain.

Colston is grounded until he is 18 and out of the house for everything he is putting us through.