Thursday, January 28, 2016

We are back at the Ronald McDonald House!

Colston did so good today. I was so worried because of what happened last time but today all they did was take pictures and look around, last time they actually did intervention stuff and that's what he reacted to. 

The cath took about two and a half hours. They didn't have any hiccups. We got to see Colston back in PACU right after. He was sleepy and loopy for most of the time in recovery. 

He had to lay there on the bed for six hours after to make sure he didn't bleed out of his groin area where they put the catheter in. About the last hour is when he started to wake up and wanted to play. 

The nurse was surprised at how good of a patient he was. She said a lot of the time they have to keep the babies sedated or strapped down so they don't move but Colston was such a trooper. The little bit that he was awake he just laid there staring and us. 

We got our discharge instructions and got to take him back to the house to be on "bed rest." They still want him to lay down as much as possible the next 24 hours. He didn't get that memo because he has been his normal crazy self ever since we got back. 

We have a couple mellow days just hanging out at the Ronald McDonald House and then we have an appointment with the surgeon on Monday and then on Tuesday he has to be admitted for his surgery on the 4th. 

I will update after we talk to the surgeon on Monday and get our game plan. 

Thanks for the prayers! 

Wednesday, January 27, 2016

We made it.

We definitely needed the last two days. 

We took a small trip down to San Marcos, California so that Colston could meet his great grandma and great grandpa (on Justin's side).


It was so awesome to see Colston so happy to see them. If Justin's dad had been with us, there would have been 4 generations of Krische's in one room. 

Colston sat up unassisted for the first time at grandma and grandpa's also!! Of course he couldn't sit up last Friday at his 6 month check up. That's alright though. 



We also took Colston to the beach for the first time. Carlsbad was absolutely beautiful. It was a sunny 73 degrees.








He did not like the water. 






It was the perfect mini vacation to take just before his heart cath which is tomorrow morning. I am so nervous. During his heart cath last time Colston went into cardiac arrest so naturally that is the only thing consuming my mind. Thankfully, I have the most amazing husband to lean on and to reassure me that Colston is so much stronger than last time. I need to keep in mind that last time, Colston was barely 5 pounds and wasn't able to eat due to being on the ventilator so he had absolutely no sustenance. 

Many many prayers are needed for tomorrow. I will update as soon as I can. 

Monday, January 11, 2016

Hi everyone! We hope you all had a wonderful Christmas. Our was amazing and crazy all at the same time. Justin and I had 3 sets of parents to go see and his work Christmas party so we had prime rib 4 times in a row. We are prime ribbed out! 

Colston did great but you could tell by Sunday that he just did not want to go anywhere. It was a perfect lazy day to end the holiday. Now we are back to reality. 

It's so unreal that we will be back at the hospital in 17 days.

 The surgery date has changed for the third time. Now Colston's heart cath is January 28 and his surgery February 4. 

I look at Colston and I just can't help but think that all the doctors are wrong. He doesn't need a second open heart surgery (and eventually a third) because he is perfectly healthy. There's nothing wrong with him. He has a perfectly working heart.  As with many heart kiddos, you would never know there was anything wrong with Colston if it wasn't for the scar that runs from his neck to just above his belly button. 



He is your typical curious 5 month old baby. He's so close to rolling over and he LOVES his jumper. He goes crazy in that thing!




I'm probably going to jinx myself by saying this, but Colston also doesn't cry when he gets his echo's anymore. He is always smiling at the doctor and doesn't try to wiggle himself out of my arms. 



This is all we have to report right now. I have to start making my list of everything we need to pack for Vegas and get things squared away up here. We are so lucky to live close to family. It is such a big help knowing our house and animals will be taken care of while we are gone. It's one less thing to worry about. 

I will update once we get to Vegas.