Friday, May 22, 2015

Unfortunate News

Yesterday we had our weekly echocardiogram at the high risk doctor to check on Colston's heart. The surgery that we did two weeks ago is still technically a "successful" surgery because he does have better blood flow in the aortic valve, however, the scar tissue in Colston's left ventricle has built up quite a bit since last week and the left side hardly pumps at all. Colston officially has Hypoplastic Left Heart Syndrome.

We knew that the surgery only had a 25% chance of preventing this but it is still a hard pill to swallow. Colston is measuring about a week smaller than he should be which has the doctor thinking he will require the first open heart surgery within the first 48 hours of his life whereas some other babies don't need it until they are about 7-10 days old. 

Justin and I have complete faith that Colston is already a fighter. He is so active too which makes me even more hopeful. 

We are planning on delivering and have the surgeries at Sunrise Children's Hospital in Las Vegas and I have to be there a month before my due date and then we plan on being there for about another month after he's born, depending on how he recovers.

1 comment:

  1. Where there is HOPE , there is faith.
    Where there is FAITH, miracles HAPPEN.
    😇🙏🏻💓

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