Thursday, May 19, 2016

What happened?

Where the heck did March and April go?

I absolutely cannot believe we are already halfway through May. I am already planning Colston's first birthday party! 

Just this time last year we were getting back from our experimental surgery at UCSF. 

There really hasn't been too much to update which is nice. We have been loving being a "normal" family. 

On April 15 Colston had a lung profusion scan done to check the blood going to each lung. Our cardiologist said that in a perfectly normal heart, 45% of blood flow goes to the left and 55% goes to the right. Colston, even being a single ventricle heart has 42% going to the left and 58% going to the right! He said that is absolutely amazing for a heart baby and he could not be happier.

We of course were so relieved because 1, he was doing great and 2, that meant we didn't have to go back to Las Vegas to have a stent placed in his left pulmonary artery. 

So now we just have check ups every 6 weeks and hopefully nothing else is needed until the Fontan in the summer of 2017. 

We used to see the cardiologist once a week, now we go 6 weeks in between appointments! I am so thankful Colston is healthy enough to be able to do that but it is the in between time that scares me. As we all know with heart babies, anything can happen in an instant. 

I think my updates will be a little spaced out from here on out. We are so thankful that people want to check on Colston and see how he is doing but sometimes there is just nothing to update and honestly, it's nice. I don't want to have to update bad things that happen so let's just hope that we only have good things to update from here on out. 

<3




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