My Big Boy

Colston got to try his first bottle today. 

I'm so proud of my baby boy. He drank a whole 5ml from it. I think we would've been able to get him to eat more had they stopped his feeds on the feeding tube earlier. The speech therapist had wanted to come in yesterday to work with him and make sure he can get sucking and swallowing down before we take the feeding tube out, but he was mr. cranky pants yesterday and just did not want anything to do with anyone so they held off. They are going to be coming by everyday and working with him for about 20 minutes at a time until he gets it down. 

He is also already working with an occupational therapist to work on his reflexes and muscle movements. They love how strong and feisty he is and they have shown us a couple different ways to help ease his pain and help soothe him a little better.

His bilirubin is now down to 8 so he got all those crazy lights off of him today. We were so happy because the only time we have gotten to see his precious face in the last four days is when we held him for about 30 minutes and the nurse let us take his mask off.

Colston had another echo today and the only thing the doctors noticed was a little bit of narrowing where the stent was placed. When they do his heart catheterization early next week they will be taking a better look at it and then another time doing a balloon dilation procedure to stretch it out. Thankfully this is relatively easy and he does not have to be opened back up for it. 

As far as set backs go, we are so thankful this is a relatively minor one. It could be a whole lot worse so we are thanking our lucky stars that as of right now his heart is doing exactly what it should be after the Hybrid procedure.