Poor Colston.
After having to go back on the ventilator four different times and being pumped full of medicines, he is now having withdraws. He is very agitated most of the day and not much comforts him except for being held. Lucky us ;)
The PICU found us a rocking chair so we now spend most of the day rocking back and forth until he falls asleep.
The doctors are watching his agitation and if it increases, they will have to give him Ativan to calm him and help keep his heart rate down, which sounds counter productive but they would start by giving him that and then slowly weaning him off. We are trying to avoid that route and quit cold turkey by keeping him calm natural ways like rocking him and holding him, and it seems to be working.
We are once again so close to going home. Our biggest hurdle is eating. The goal is for him to drink 50mL from the bottle. Right now he drinks about 30 and then gets tired and they end up putting the rest through his feeding tube. As soon as he can take the whole bottle for a consistent 24 hours, we will be on our way home!
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